Integrating Patient-Reported Outcome Data

in Health Care and Research

Patient-reported outcomes (PROs) are any reports of the patients’ perspectives about the impact of disease and treatment on their health status, for example quality of life and symptoms, without the interpretation of a clinician, or anyone else (FDA 2009).

Our goal is improving oncological patients’ lives by informing clinical care and research about the possibilities and benefits of using PRO data.

This is why the PROspective Task Force at the Health Outcomes Research Unit Innsbruck is working on multiple projects aiming for the increased application of PRO data in a variety of settings.

Want to connect?


prospective@i-med.ac.at

We are working on

Setting standards – see our projects and collaborations on developing standards of PRO data use:

  • HORIZON 2020 IMI
  • the Development of an Interpretation Guideline for the EORTC PRO measures
  • the Development of an e-Learning Programme for the EORTC PRO measures
  • the Update of the EORTC PRO Reference Value Manual (pending funding procedure)

Assessing data – see our projects and collaborations on developing PRO instruments:

  • EORTC QOL Module on Renal Cell Cancer
  • EORTC QOL Bladder Cancer Modules Update
  • EORTC QOL Module on Hereditary Cancer Predisposition Syndromes (QLQ-HCPS)

Using data – see our projects and collaborations on making PRO data work in clinical practice and research:

  • Implementation of PRO data assessment in clinical routine
  • Routine cancer-related distress screening and psycho-oncological quality assurance
  • Evaluating the use of the EORTC PRO measures for improving the inter-rater reliability of CTCAE ratings – EORTC CTCAEplusPRO

University Hospital
for Psychiatry II

Health Outcomes Research Unit

Medical University
of Innsbruck